Azathioprine and Prednisolone

This week I had my first post-hospital check up with my Doctor. I first saw the nurse who took my weight (I've finally managed to put on some!) and my height (I've grown 1/4 inch, i'm now a massive 5"2 1/4! I then saw a specialist Crohns nurse who my doctor had asked me to see. She was the most helpful person I have spoke to so far and gave me so much information. The blood test from a couple of days before showed I still had high inflammation and low protein. I have come off the steroids I was on as my symptoms had got worse and she suggested the dosage wasn't high enough so I have been put on another 6 week course which decreases my one tablet each week, this is called Prednisolone. I have also been put on Azathioprine which is an immunosuppressant to stop the cells in my immune system attacking my body and causing inflammation. These can take up to 6 weeks to start making a difference so as the steroids decrease these should kick in and start to work. 2/3 people are fine on this but the other third can suffer from side effects such as flu symptoms and joint pain which I need to be aware of. It also says a 'very common' side effect is anorexia which I cant understand! I will need to have blood tests weekly to check my liver function  and anaemia which start this Friday. I also had several questions to ask which she answered fully such as Can I give blood? Nope, I need it! Can I take paracetamol and codeine? Yes, anything but ibuprofen is fine. Can I drink alcohol? Yes, in moderation. My original doctor came in to visit during the appointment and said some words that have really helped. He said its up to me now I really need to own it and if I want to be better they will do everything they can to help like giving me the medication I need but its up to me to take it and look after myself and focus on getting better. It has made me realise that this needs to be priority now and everything else like University and other things can wait. He said that if the medicine starts to work I should be able to go back but if they don't then I wont be able to go on the Cologne trip so fingers crossed!

A month on Meds

On Saturday it will have been a month since I came out of hospital where I was diagnosed with Crohns and things are definitely much better! I'm having more good days than bad and some days when I forget i'm even ill at all. I've been able to go and visit Coventry which I didn't think I would manage for awhile but its also shown me that I do need to take it easy and i'm not as strong as I was before. I get tired quickly and my legs ache but I hope that when I come back to University in January I will be able to cope. Since coming out of hospital I've been on some medication which I think has been working for me. These are Entocort which I take 3 capsules but will only be 2 next month, 1 capsule of Omeprazole and 2 Adcal tablets (my new prescription is for tutti-fruiti flavour!)  All the tablets are fine but its taken some time to get used to not being able to eat an hour after I've taken them! It means getting up an hour before I want to eat breakfast! 

Hopefully i'm going back to see the gastroenterologist in a couple of weeks and then I have an MRI scan on Friday and that will be it until the new year which is exciting. I can see in myself the progress I've made, not just with how much better I feel but how well I can cope with things. I was terrified of needles and couldn't get a blood test but now the thought doesn't scare me, I might even look into giving blood! Things are definitely looking up!